Regular readers of my blog will know that we’re a family who love to get out and about as much as possible. My philosophy tends to be along the lines of “there’s no such thing as bad weather, just inappropriate clothing” which I usually follow, within sensible limits weather-wise. I am always amazed by how… Read More
A few weeks ago, I was contacted by Action Medical Research, a charity which funds medical research on children’s disease. They wanted to use a photo of Jessica in their supporter magazine to highlight the research that they are jointly funding with Great Ormond Street Hospital Children’s Charity into improving surgery for babies born with… Read More
My daughter Jessica has a complex congenital heart defect called hypoplastic left heart syndrome (HLHS). Children born with HLHS effectively have only half a working heart. Here are ten facts about HLHS and my heart child: 1) HLHS occurs in approximately 1 in every 5000 babies. 2) It is a condition where the… Read More
From the mouths of babes is a weekly linky which invites you to share a post, old or new, about something your children have said. Those adorable mispronounced words, the glimpses into their imaginations, the blunt observations – whatever it is, I’d love to hear about it! A big thank you to everyone who… Read More
1) What it means to be a heart parent It took just seven words to change my entire life. Seven words which broke my heart, shattered my dreams and turned my world upside down. Seven words from which I emerged a stronger and more compassionate person. “There’s something wrong with the baby’s heart.” My… Read More
Throughout 2016 I will be posting a photo on Instagram each day, sharing something that I am grateful for each day as part of my #366daysofgratitude project. Here are the things I have been grateful for this week: Day 31 – I am grateful for some one-to-one time with my big girl at another pirate-themed… Read More