Author: Louise
Useful organisations and support groups for heart families
Since the day we found out about our daughter’s heart condition, the support and information we have received through various organisations has been invaluable in helping us through our heart family journey. We quickly realised that we were not alone in the journey, that there were others who had travelled it too, as well as… Read More
Friday Fabulous Five #56
The Friday Fabulous Five is my regular feature where I share five of my favourite blog posts that I have read in the previous week – posts that have made me laugh, made me cry or made me think. With this week being Heart Week, my Friday Fabulous Five is all about other heart family… Read More
The Friday Focus – 12/02/16
This week is Heart week and I’ve been focusing a lot on raising awareness of congenital heart defects, as I do every year. My blog posts this week have all been heart-focused and I’ve been busy with various fundraising events for heart charities this week too. Jessica had her monthly community nurse check-up yesterday to… Read More
Outdoor fun with my heart child
Regular readers of my blog will know that we’re a family who love to get out and about as much as possible. My philosophy tends to be along the lines of “there’s no such thing as bad weather, just inappropriate clothing” which I usually follow, within sensible limits weather-wise. I am always amazed by how… Read More
Action Medical Research: funding new research to help improve surgery for babies with HLHS
A few weeks ago, I was contacted by Action Medical Research, a charity which funds medical research on children’s disease. They wanted to use a photo of Jessica in their supporter magazine to highlight the research that they are jointly funding with Great Ormond Street Hospital Children’s Charity into improving surgery for babies born with… Read More
Ten facts about HLHS and my heart child
My daughter Jessica has a complex congenital heart defect called hypoplastic left heart syndrome (HLHS). Children born with HLHS effectively have only half a working heart. Here are ten facts about HLHS and my heart child: 1) HLHS occurs in approximately 1 in every 5000 babies. 2) It is a condition where the… Read More