Category Archives: CHD

Sharing our experiences of parenting a child with a congenital heart defect

CHD from a parent’s perspective – is it wrong to share?

I read a lot of blogs from heart parents and parents of children with additional needs. Occasionally, I come across blogs and articles written from the perspective of children or adults who are living with CHD or another medical condition, or who have additional needs. Every so often, there is an article which shocks me and makes me stop and think; one in which there is harsh criticism of parents sharing their child’s story when it is not their story to share.… Read more

This is our normal

Most of the time our family life ticks along quite normally and then every so often, we hit a little bump which brings a realisation that what’s normal for us may not be that normal after all.  Yesterday morning was one of those times.  A phone call from school to say that Jessica was unwell and could I go and pick her up.  Unwell in this case translated as being blue and jittery.  When I got to school, Jessica was lying down on the floor in her classroom, wrapped in her coat to warm her up with the teaching assistant holding her hand and telling her a story, while watching her closely.  Jessica’s lips and cheeks were purple although thankfully she no longer appeared jittery.… Read more

A pink heart on a yellow background with the text "Think 20. THINK HEART."

Think 20. Think HEART: Do you know what to expect from your 20-week scan?

The 20-week scan is an exciting moment for many pregnant women.  The opportunity to see your baby on screen again, and perhaps to find out if you’re having a boy or a girl.  As well as being an exciting moment, it’s also an important one.  This is the scan where the sonographer checks to make sure that the baby is developing normally and there are no abnormalities.… Read more

Preparing for my heart child to start school

The first day at school is such a huge milestone.  Like many other mums on their child’s first day at school, I was emotional.  My baby was taking another step out into the world; the start of a new adventure. An adventure that I might get to hear about, but not be a part of.  She was excited about this new adventure.… Read more