Support and community are two of the things that I feel are very important as a heart parent – the knowledge that we are not alone in our journeys and that there are others who can empathise. It is one of the reasons why I set up my Heart to Heart linky – to help… Read More
One of my day-to-day worries as a heart parent is trying to work out just how much exercise is safe for my heart child. I know that it is important for her to get a good amount of exercise, but I worry about her overexerting herself and potentially putting strain on her heart.  We have… Read More
September is a very big month for us as a family – celebrating Jessica’s birthday and two of her heart days (one being on her birthday and the other just a week later). It’s a time when I find myself reflecting a lot about the journey we have been on as a family and the… Read More
There is a fear that lurks at the back of my mind. It is always there. Most days I can push it away, almost forget about but every so often, something will bring it back into sharp focus. Sometimes the triggers are completely unexpected – a photograph glimpsed, a line spoken in a movie, a… Read More
The last month has given me a bit of a reminder of the uncertainty that comes with life as a heart family when Jessica’s sats were lower than normal at a routine community nurse visit, prompting an unexpected hospital visit the next day for a more in-depth check-up. Thankfully it seems to have been just… Read More
I can still remember the first time I took Jessica swimming. It was on a day out at Butlins when she was ten months old. We’d been in the pool about ten minutes before I became concerned about how blue she was. By the time we managed to get out of the pool, she was… Read More
It’s been a year since I first started my Heart to Heart linky. Over this last year, I have been blessed to be a part of a small community of heart families within the blogosphere who have shared their stories to help raise awareness of congenital heart defects and to help others who are travelling… Read More
