Little Hearts, Big Love - Finding gratitude amongst the grief of life without our heart angel
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Tag Archives: hearttoheart

Heart to Heart – October 2015

15/10/201519/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Support and community are two of the things that I feel are very important as a heart parent – the knowledge that we are not alone in our journeys and that there are others who can empathise. It is one of the reasons why I set up my Heart to Heart linky – to help… Read More

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Exercise advice for heart children – what is safe?

14/10/201515/08/2022

One of my day-to-day worries as a heart parent is trying to work out just how much exercise is safe for my heart child. I know that it is important for her to get a good amount of exercise, but I worry about her overexerting herself and potentially putting strain on her heart.   We have… Read More

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Heart to Heart – September 2015

15/09/201519/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

September is a very big month for us as a family – celebrating Jessica’s birthday and two of her heart days (one being on her birthday and the other just a week later). It’s a time when I find myself reflecting a lot about the journey we have been on as a family and the… Read More

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The fear that lurks within

10/09/201511/10/2017

There is a fear that lurks at the back of my mind. It is always there. Most days I can push it away, almost forget about but every so often, something will bring it back into sharp focus. Sometimes the triggers are completely unexpected – a photograph glimpsed, a line spoken in a movie, a… Read More

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Heart to Heart – August 2015

15/08/201519/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

The last month has given me a bit of a reminder of the uncertainty that comes with life as a heart family when Jessica’s sats were lower than normal at a routine community nurse visit, prompting an unexpected hospital visit the next day for a more in-depth check-up. Thankfully it seems to have been just… Read More

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Swimming with my heart child

11/08/201513/08/2015

I can still remember the first time I took Jessica swimming. It was on a day out at Butlins when she was ten months old. We’d been in the pool about ten minutes before I became concerned about how blue she was. By the time we managed to get out of the pool, she was… Read More

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Heart to Heart – July 2015

15/07/201519/07/2017
A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

It’s been a year since I first started my Heart to Heart linky. Over this last year, I have been blessed to be a part of a small community of heart families within the blogosphere who have shared their stories to help raise awareness of congenital heart defects and to help others who are travelling… Read More

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I'm Louise, mummy of three - Jessica, forever six, who was born with half a heart and lives on in mine; and heart-healthy Sophie (born 2013) and Thomas (born 2018). I blog about living with grief after child loss, crafts, days out and the little moments of family life.

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A square cartoon showing the Little Hearts, BIg Love logo with four interconnecting hearts (3 red, 1 blue), cartoon drawings of a woman, a toddler boy, a little girl, a little girl with angel wings and a man and text above "finding gratitude amongst the grief of life without our heart angel"

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