This week is Heart week and I’ve been focusing a lot on raising awareness of congenital heart defects, as I do every year. My blog posts this week have all been heart-focused and I’ve been busy with various fundraising events for heart charities this week too. Jessica had her monthly community nurse check-up yesterday to check her oxygen saturation levels and weight. Whilst her weight gain was fine, her sats were lower than usual – they normally are around 80, but this time they were hovering around 73-76. We had a chat with our cardiac liaison nurse and as Jessica seems well in herself, apart from a slight cough, we will just keep a close eye for now and check her sats again later today at home. The community nurse has brought her next visit a little closer so will come again in a fortnight rather than leaving it a month and we have a couple of hospital appointments coming up in the next few weeks anyway. I’m hoping that it’s just a momentary blip and not a sign that Jessica needs the next surgery sooner rather than later.
Things I have loved this week:
- Having a coffee morning at church in aid of Little Hearts Matter.
- Watching Sophie playing with a smaller child at toddler group and sharing the toys beautifully with her.
- An afternoon baking biscuits with the girls.
- Eating pancakes and wondering as I do every year, why I so rarely cook them at any other time.
- Jessica’s preschool having a wear it red day, with stay and play sessions, a cake sale and a guess the Love Hearts game in aid of Tiny Tickers.
- Jessica’s toddler signing class also supporting Heart Week with another guess the Love Hearts game in aid of Tiny Tickers. What really touched me was that every single parent in the class joined in with it and donated, and most of them don’t know Jessica’s story at all.
- Being featured on the first Meet the Parents podcast where I shared my post on “What it means to be a heart parent” to help raise awareness of Heart Week.
- My ‘what it means to be a heart parent’ post being shared on the Action Medical Research blog – they are currently funding research into improving heart surgery for babies with HLHS, the heart condition that Jessica has.
- Starting this year’s 40acts challenge for Lent.
- Jessica’s enthusiasm for learning French with Mummy – she has asked me every day this week “can we do some French now please Mummy?” and her latest favourite thing is to count to ten in French. I just need to work on improving my French now!