There is a moment every Christmas, where everything just gets a bit too much. The moment when the to-do list suddenly feels too long; when the pressure to be perfect is too intense; when the hustle and bustle of the festive season feels too overwhelming. There is a moment when… View Post
I read a lot of blogs from heart parents and parents of children with additional needs. Occasionally, I come across blogs and articles written from the perspective of children or adults who are living with CHD or another medical condition, or who have additional needs. Every so often, there is… View Post
Co-sleeping always sounded like the perfect solution to sleep deprivation. Snuggling up with my baby, being able to feed them while lying down, both of us dozing off, just drifting in and out of beautiful slumber… Then as they grew into toddlers, the reassurance of Mummy and Daddy’s presence nearby… View Post
Last December we performed “We Need A Little Christmas” from Mame in our fundraising concert. This year, we decided to perform the same number again – with a little twist. This time, with our concert taking place in November rather than December, we decided to bemoan the fact that Christmas… View Post
I found out last night that Jessica’s cardiac consultant is retiring at the end of the year. It feels like a rug has been pulled out from underneath my feet. This is the consultant that diagnosed Jessica, the consultant that has been part of our journey from the very start.… View Post
Once upon a time, I was a tidy person. Back in the day when I had only myself to clean up after, I lived a fairly mess-free existence. And then along came a husband and two children and life became very busy and very messy. Instead of just tidying up… View Post
I can still remember the first time I took Jessica swimming. It was on a day out at Butlins when she was ten months old. We’d been in the pool about ten minutes before I became concerned about how blue she was. By the time we managed to get out… View Post
