The day after Jessica’s funeral, we attended the Little Hearts Matter memorial service at the National Memorial Arboretum. Six months on from the last day of her life, we returned for the Little Hearts Matter autumn memorial walk. For us, the day was about having space to remember Jessica and our beautiful memories of… Read More
Yesterday we got the call that we’d been expecting and dreading. The date for Jessica’s next heart surgery. My world has shrunk to a few short weeks – a date in the calendar that I cannot see beyond. I know it has to happen. I know she needs this surgery, and that all being well,… Read More
3AM. I am sitting between my children’s beds, holding a hand each as I wait for them to go back to sleep. Listening to my husband snoring. In this moment I feel so utterly alone. Successive nights of interrupted sleep have broken me. 3AM is when I snap, when it all becomes too much… Read More
It’s in the little moments that the reality of being a heart mum hits me most. The little moments that catch me off-guard and bring tears to my eyes. Seeing my daughter enjoying a ballet class. Watching her play in the playground with her friends. The way she reaches out to hold her little sister’s… Read More
On 4th May 2011 I woke in the early hours of the morning and cried as I remembered the events of the previous day. Scared for my unborn baby’s future, scared of the journey that lay ahead. I wished I could wake in the morning and find it had all been a bad dream. … Read More
Six years on. Six years since the scan that changed our lives completely. The start of our journey as a heart family. One minute we were expecting a normal healthy baby. The next, we were heart parents. Our lives turned upside-down; excitement replaced by fear. Would our baby survive? What would the future hold? And… Read More