Category Archives: Heart to heart

I’m a heart mummy but I’m not superhuman

Being a heart mummy can be perceived sometimes as being a bit of a super mummy.  I am often told “you’re so brave”, “you’re so strong”, “I don’t know how you cope with it all” and whilst it is true that I try to be brave and I try to be strong, there have also been many times when I feel anything but brave or strong, and I’m not entirely sure how I cope with it all either.… Read more

Ten facts about HLHS and my heart child

My daughter Jessica has a complex congenital heart defect called hypoplastic left heart syndrome (HLHS) which basically means that she has half a working heart. Here are ten facts about HLHS and my heart child:

Ten facts about HLHS and my heart child - Little Hearts, Big Love

1) HLHS occurs in approximately 1 in every 5000 babies.

2) It is a condition where the left side of the heart is significantly underdeveloped, preventing oxygenated blood from going from the heart to the body.… Read more

What it means to be a heart parent - an insight into life as a parent of a child with CHD - Little Hearts, Big Love

My top ten posts about congenital heart defects and life as a heart family

1) What it means to be a heart parent

What it means to be a heart parent - an insight into life as a parent of a child with CHD - Little Hearts, Big Love

It took just seven words to change my entire life.

Seven words which broke my heart, shattered my dreams and turned my world upside down.

Seven words from which I emerged a stronger and more compassionate person.

“There’s something wrong with the baby’s heart.”

 

My most popular post by far describes what it really means to be a heart parent.… Read more

Taking my heart baby home for the first time: a milestone moment - Little Hearts, Big Love

Taking my heart baby home for the first time: a milestone moment

The first time you take your baby home from the hospital is a milestone moment for everyone, but so much more so when it is a moment that almost up until when it finally happens, you hardly dare to dream it could.

Taking my heart baby home for the first time: a milestone moment - Little Hearts, Big Love

The last time I had stepped foot in my house had been four weeks earlier.… Read more