Four years ago, we walked into a scan room full of excitement at the prospect of getting to see our baby and left with our world turned completely upside-down. Four years since we started our journey as a heart family. Four years ago, we were devastated and scared, not knowing… View Post

Stories from the heart – Heart Mammi

Stories from the heart – Heart Mammi

Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is the final guest post of the month and comes from Gemma who blogs over at Heart Mammi. Gemma is a mum of three children and her youngest daughter Martha Grace was born with… View Post

Stories from the heart – Adventures from the Heart

Stories from the heart – Adventures from the Heart

Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is from Lee who, with his wife Freya, blogs over at Adventures from the Heart.  Lee and Freya’s second child Erin was born with hypoplastic left heart syndrome, the same heart condition that my… View Post

To us on the day we became heart …

To us on the day we became heart parents

I see you sitting there in that scan room. Cold with fear and the terrible realisation that something is wrong, very wrong with your baby’s heart. I see you clinging to each other. Neither wants to voice the terrible thought that fills both your minds – that your child will… View Post

Christmas on the cardiac ward

Christmas on the cardiac ward

The phone call came towards the end of November – we had a date for Jessica’s open-heart surgery. We had hoped that we might be able to have Christmas together first but it was not to be – the surgery was set for 14th December. We couldn’t focus on the… View Post

A hymn of thankfulness

A hymn of thankfulness

One of my favourite hymns is ‘Great is thy faithfulness’. It is written on the inside of my diary; the words helped me get through those difficult early days following Jessica’s diagnosis, her heart surgeries and the long days on PICU and the ward as she recovered. It continues to… View Post

The truth about… the 20 week scan

The truth about… the 20 week scan

The 20 week scan. This is often referred to as a gender scan. It’s an exciting time, being able to see your baby again and find out its a boy or girl. However, there’s much more to this scan than finding out the baby’s gender. The 20 week scan, or… View Post