Four years ago, we walked into a scan room full of excitement at the prospect of getting to see our baby and left with our world turned completely upside-down. Four years since we started our journey as a heart family. Four years ago, we were devastated and scared, not knowing where or how we would… Read More
Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is the final guest post of the month and comes from Gemma who blogs over at Heart Mammi. Gemma is a mum of three children and her youngest daughter Martha Grace was born with an interrupted aortic arch and… Read More
Throughout Heart Month, I’ll be sharing various stories from heart families about their experiences. Today’s post is from Lee who, with his wife Freya, blogs over at Adventures from the Heart. Lee and Freya’s second child Erin was born with hypoplastic left heart syndrome, the same heart condition that my daughter Jessica has and was… Read More
I see you sitting there in that scan room. Cold with fear and the terrible realisation that something is wrong, very wrong with your baby’s heart. I see you clinging to each other. Neither wants to voice the terrible thought that fills both your minds – that your child will die. I see your tears,… Read More
The phone call came towards the end of November – we had a date for Jessica’s open-heart surgery. We had hoped that we might be able to have Christmas together first but it was not to be – the surgery was set for 14th December. We couldn’t focus on the thought of Christmas – not… Read More
One of my favourite hymns is ‘Great is thy faithfulness’. It is written on the inside of my diary; the words helped me get through those difficult early days following Jessica’s diagnosis, her heart surgeries and the long days on PICU and the ward as she recovered. It continues to give me strength. There is… Read More
The 20 week scan. This is often referred to as a gender scan. It’s an exciting time, being able to see your baby again and find out its a boy or girl. However, there’s much more to this scan than finding out the baby’s gender. The 20 week scan, or anomaly scan, is to check… Read More