A heart with the text "Heart to Heart" on one side and a picture of hands making a heart over a child's chest with the text "A linky for sharing posts about CHD"

Heart to Heart – February 2016

Heart to Heart linky was set up to help other heart families share their stories and experiences in order to help support each other as a community. It opens on…

Siblings – February 2016

Sophie has now reached the stage where we can go for walks without needing to bring the buggy or a toddler carrier along which has felt quite liberating. The change…

#366daysofgratitude – Week 6

Throughout 2016 I will be posting a photo on Instagram each day, sharing something that I am grateful for each day as part of my #366daysofgratitude project. Here are the…

My Sunday Photo – 14/02/16

Useful organisations and support groups for heart families

Since the day we found out about our daughter’s heart condition, the support and information we have received through various organisations has been invaluable in helping us through our heart…

Friday Fabulous Five #56

The Friday Fabulous Five is my regular feature where I share five of my favourite blog posts that I have read in the previous week – posts that have made…

The Friday Focus – 12/02/16

This week is Heart week and I’ve been focusing a lot on raising awareness of congenital heart defects, as I do every year. My blog posts this week have all…

Outdoor fun with my heart child

Regular readers of my blog will know that we’re a family who love to get out and about as much as possible. My philosophy tends to be along the lines…

Jessica recovering from her third open-heart surgery

Action Medical Research: funding new research to help improve surgery for babies with HLHS

A few weeks ago, I was contacted by Action Medical Research, a charity which funds medical research on children’s disease. They wanted to use a photo of Jessica in their…

Ten facts about HLHS and my heart child - Little Hearts, Big Love

Ten facts about HLHS and my heart child

My daughter Jessica has a complex congenital heart defect called hypoplastic left heart syndrome (HLHS). Children born with HLHS effectively have only half a working heart. Here are ten facts…