Tag Archives: thetruthabout…

Christmas – when it all gets a bit much

There is a moment every Christmas, where everything just gets a bit too much. The moment when the to-do list suddenly feels too long; when the pressure to be perfect is too intense; when the hustle and bustle of the festive season feels too overwhelming.  There is a moment when suddenly the bubble pops and Mummy snaps.… Read more

CHD from a parent’s perspective – is it wrong to share?

I read a lot of blogs from heart parents and parents of children with additional needs. Occasionally, I come across blogs and articles written from the perspective of children or adults who are living with CHD or another medical condition, or who have additional needs. Every so often, there is an article which shocks me and makes me stop and think; one in which there is harsh criticism of parents sharing their child’s story when it is not their story to share.… Read more

The truth about co-sleeping - Little Hearts, Big Love

The truth about co-sleeping

Co-sleeping always sounded like the perfect solution to sleep deprivation.  Snuggling up with my baby, being able to feed them while lying down, both of us dozing off, just drifting in and out of beautiful slumber…  Then as they grew into toddlers, the reassurance of Mummy and Daddy’s presence nearby in the night, being able to soothe them instantly if they had a bad dream and drifting back to sleep once more.  Snuggled up together, sleeping blissfully – it sounded perfect.  Four years on from those pre-baby fantasies of what co-sleeping would be like, I have learned that while co-sleeping might be a way of getting a little more sleep, it is not quite that blissful snuggly slumber that I imagined it would be.… Read more

We Need A Bit Less Christmas

Last December we performed “We Need A Little Christmas” from Mame in our fundraising concert. This year, we decided to perform the same number again – with a little twist. This time, with our concert taking place in November rather than December, we decided to bemoan the fact that Christmas seems to start earlier and earlier each year and so I rewrote the lyrics to create our own version – “We Need A Bit Less Christmas”

We Need A Bit Less Christmas - Little Hearts, Big Love

Please stop this folly

For three long months it’s been in nearly every store

Cards, tinsel, holly

We’ve had enough, it’s getting to be quite a bore now

 

For we need a bit less Christmas

As it’s still November

Please stop singing carols

Wait until December

Yes we need a bit less Christmas

Hold off for a minute

It hasn’t snowed a single flurry

So why are we all in a hurry?… Read more

Trusting the medical team and the uncertainty of change - reflection on a change of cardiac consultant - Little Hearts, Big Love

Trusting the medical team and the uncertainty of change

I found out last night that Jessica’s cardiac consultant is retiring at the end of the year. It feels like a rug has been pulled out from underneath my feet. This is the consultant that diagnosed Jessica, the consultant that has been part of our journey from the very start.… Read more

The real reasons why I'm cleaning my house - Little Hearts, Big Love

The real reasons why I’m cleaning my house

Once upon a time, I was a tidy person. Back in the day when I had only myself to clean up after, I lived a fairly mess-free existence. And then along came a husband and two children and life became very busy and very messy. Instead of just tidying up after myself, I had three other people creating a mess and frequently it was just me cleaning it up afterwards.… Read more

Swimming with my heart child - Little Hearts, Big Love

Swimming with my heart child

I can still remember the first time I took Jessica swimming. It was on a day out at Butlins when she was ten months old. We’d been in the pool about ten minutes before I became concerned about how blue she was. By the time we managed to get out of the pool, she was very blue, breathing hard and was decidedly floppy.… Read more

What it means to be a heart parent - an insight into life as a parent of a child with CHD - Little Hearts, Big Love

What it means to be a heart parent

It took just seven words to change my entire life.

Seven words which broke my heart, shattered my dreams and turned my world upside down.

Seven words from which I emerged a stronger and more compassionate person.

 

“There’s something wrong with the baby’s heart.”

 

In that moment, I felt fear colder and stronger than any I’d ever known before

In that moment, I knew I would do anything I could to save my child’s life.… Read more

The futility of trying to catch up with blogmin - Little Hearts, Big Love

The futility of trying to catch up with blogmin

Hubby’s away and I swear the children have a sixth sense for when I have a huge list of things to do once they’re in bed. To say bedtime has been protracted is an understatement – I have been up and down the stairs too many times and by the time both kids are asleep, it’s way past nine o’clock and I’m exhausted.… Read more