Friday 13th May 2011. A day that was hugely significant for us; a hospital appointment that would change our lives forever. Looking back, I recall it as a series of flashback moments. Walking into the hospital holding hubby’s hand, my legs shaking and a sick feeling in the pit of my stomach.… Read more
Four years ago, we walked into a scan room full of excitement at the prospect of getting to see our baby and left with our world turned completely upside-down. Four years since we started our journey as a heart family. Four years ago, we were devastated and scared, not knowing where or how we would find the strength for the steps that lay ahead and clinging to our faith and belief that somehow God would help us endure what had to be endured.… Read more
I see you sitting there in that scan room. Cold with fear and the terrible realisation that something is wrong, very wrong with your baby’s heart. I see you clinging to each other, neither wanting to voice the terrible thought that fills both your minds – that your child will die.… Read more
One of my favourite hymns is ‘Great is thy faithfulness’. It is written on the inside of my diary; the words helped me get through those difficult early days following Jessica’s diagnosis, her heart surgeries and the long days on PICU and the ward as she recovered. It continues to give me strength.… Read more
Joy, for me, is more than just being happy – it’s a much deeper emotion and I can honestly say that some of my most joyful moments have been during the most difficult times of my life.
My pregnancy with Jessica was an incredibly joyous time. This might sound strange given that we found out about her heart condition at 20 weeks and were told that the chances of her survival were extremely low, but despite all the heartache we experienced during that time, there was also joy.… Read more
This photo was taken two and a half years ago as my daughter Jessica recovered from an open-heart surgery known as the Glenn procedure.
The photo above was taken three years ago today – a precious moment with Jessica as we prepared for her to go to theatre for the second time since she was born. I remember it like it was yesterday – the anxious waiting, not wanting to leave her cot for a moment, wanting to spend as much time as we could with her and praying that all would be well.… Read more
My husband and I held each other tightly as we sobbed together in the hospital chapel, our world having fallen apart just moments earlier when we had been told that our unborn baby girl was unlikely to be suitable for surgery and would probably only live a few hours at best.… Read more
“If I was seeing this in a newborn baby, I would be advising against surgery as it is so unlikely to be successful.”
I was 22 weeks pregnant with my first baby and my world had fallen apart two weeks earlier when we had found out that our baby girl had a serious and complex heart defect.… Read more
This week’s word of the week is:
It’s been quite a significant week for my two girls. On Sunday, Sophie sat without being supported for the very first time during crèche at church and whilst she still tends to loll to one side and fall over, she is managing to sit by herself for longer and longer each day.… Read more