Tag Archives: hearttoheart

Ten facts about HLHS and my heart child

My daughter Jessica has a complex congenital heart defect called hypoplastic left heart syndrome (HLHS) which basically means that she has half a working heart. Here are ten facts about HLHS and my heart child:

Ten facts about HLHS and my heart child - Little Hearts, Big Love

1) HLHS occurs in approximately 1 in every 5000 babies.

2) It is a condition where the left side of the heart is significantly underdeveloped, preventing oxygenated blood from going from the heart to the body.… Read more

What it means to be a heart parent - an insight into life as a parent of a child with CHD - Little Hearts, Big Love

My top ten posts about congenital heart defects and life as a heart family

1) What it means to be a heart parent

What it means to be a heart parent - an insight into life as a parent of a child with CHD - Little Hearts, Big Love

It took just seven words to change my entire life.

Seven words which broke my heart, shattered my dreams and turned my world upside down.

Seven words from which I emerged a stronger and more compassionate person.

“There’s something wrong with the baby’s heart.”

 

My most popular post by far describes what it really means to be a heart parent.… Read more

New Year – a heart mummy’s perspective

A new year is like opening a book full of blank pages. Wondering what is going to be written on those pages. At the start of the new year, the thought of those blank pages frightens me. What things will be written on them? That there will be happy moments, exciting moments, fun moments I have no doubt.… Read more

How Christmas on the cardiac ward taught me to be thankful - Little Hearts, Big Love

How Christmas on the cardiac ward taught me to be thankful

The run-up to Christmas can be a very stressful time – so much to do, cards to write, presents to buy, parties to attend – busy, busy, busy. This time four years ago though, we could barely focus on the festive season.   All around us, it seemed everyone was excited about Christmas, but for us there was a huge obstacle in its way.… Read more

Two Important Ways to Give Your Baby's Heart a Better Start - a guest post from Aimee Foster - Little Hearts, Big Love

Two Important Ways to Give Your Baby’s Heart a Better Start

Raising awareness of congenital heart defects and the importance of the 20 week scan is something that is very important to me as a heart parent. I know that had Jessica’s heart condition not been detected at the 20 week scan, she would not be here today. Sadly, even with early detection, there are still many babies whose hearts are just too poorly for them to survive.… Read more

Heart to Heart – October

Support and community are two of the things that I feel are very important as a heart parent – the knowledge that we are not alone in our journeys and that there are others who can empathise. It is one of the reasons why I set up my Heart to Heart linky – to help other heart parents to share their stories and the experiences and to help support each other as a community.… Read more

Exercise advice for heart children - what is safe? - Little Hearts, Big Love

Exercise advice for heart children – what is safe?

One of my day-to-day worries as a heart parent is trying to work out just how much exercise is safe for my heart child. I know that it is important for her to get a good amount of exercise, but I worry about her overexerting herself and potentially putting strain on her heart.   We have been told that she will self-limit but sometimes it is hard not to step in and restrict her if I think she is getting tired.… Read more