Category Archives: CHD

Sharing our experiences of parenting a child with a congenital heart defect

The mummy I might have been: how did being a heart parent change me?

When does parenthood begin? That moment when everything changes; when that person we once becomes someone new; someone whose decision-making and thoughts are changed forever. Does it begin with the birth of a new baby – when we “officially” become mummy and daddy? Or does it start further back with two little lines on a white stick?… Read more

Travelling to the 12 corners of the UK in a Tuk Tuk for Healing Little Hearts

Our family challenge last year was to travel from Land’s End to John O’Groats on public transport. Last month, we attended the Land’s End-John O’Groats Association awards dinner in Torquay where we were presented with our certificates and Sophie won the Jack Adams/Richard Elloway trophy for being the youngest person to do the journey in 2016.… Read more

Heart Month 2017: Jessica’s Journey – our CHD story

February is Heart Month – a month of raising awareness about congenital heart defects, the charities that help support heart children and their families and sharing stories about life with CHD. As many of my blog readers will know, my daughter Jessica was born with a complex CHD called hypoplastic left heart syndrome (HLHS).  This heart condition basically means that she has half a working heart.  Jessica has undergone several heart surgeries since her heart condition was first picked up at my 20 week scan.… Read more

Tiny Tickers Heart Week 2017 logo

Heart Week 2017 – help Tiny Tickers improve outcomes for babies born with heart defects

Raising awareness of congenital heart defects and working with heart charities to help improve outcomes for heart children is something that is very important to me. Each year, I get involved in Heart Week in February to try and raise money for heart charities. For the last couple of years, I have been involved in Tiny Tickers’ fundraising campaign.… Read more

Me, hubby, Jessica and Sophie in the photo booth at the Friends of PICU party

Me and Mine – November

I can’t quite believe that we’re at the end of November already – and Christmas is now just around the corner! That said, we’ve started to get in the festive spirit already – the girls have seen Father Christmas twice already and will be seeing him at least a couple more times in the run-up to Christmas Day!… Read more