My Sunday Photo 19/02/17

Being a heart family brings many challenges and struggles, but it has also brought many moments of joy too. Meeting other heart families, building friendships and seeing Jessica bond with other heart children has been one of the biggest positives of this journey. To be able to talk to another family who understands the rollercoaster ride that comes with a CHD diagnosis makes the journey a little easier.

 

Having heart family friends is a huge gift. Our normal is their normal. We don’t have to explain, or justify anything, or deal with well-meaning, but completely inaccurate assumptions. We can just be ourselves. For a moment, we are no longer different.

 

Yesterday, we enjoyed a day out with another heart family who we met for the first time at a heart family Christmas party last year. Jessica and P both have a similar heart condition. Jessica has hypoplastic left heart syndrome (where the left side of her heart is underdeveloped). With P it is the other side of her heart that is affected. Between the two of them, they have one whole heart. I have to say, looking at them together, that whole heart is a pretty big and loving one.

 

Jessica and Sophie giving their friend P a big hug

OneDad3Girls

42 thoughts on “My Sunday Photo 19/02/17

    1. Louise Post author

      It certainly is amazing how well Jessica copes considering hers only half works! It was so lovely to see her having fun with her friend πŸ™‚

      Reply
    1. Louise Post author

      Thanks Tim – it is lovely to see how they’ve formed such a lovely friendship despite only having met once before.

      Reply
    1. Louise Post author

      Thank you Alan – it is lovely to meet other families and to see Jessica making a friendship like this is wonderful πŸ™‚

      Reply
  1. Neesie

    That’s a beautiful photograph Louise. I loved your words about them making one heart. Thank you for sharing such a moment. It’s very thought provoking and just shows how wonderful it is to have support.
    Hugs to you all πŸ˜€

    Reply
    1. Louise Post author

      Thank you Neesie. It was such a lovely moment with the three of them having a big hug together. They had such a wonderful time and it is so lovely to make friends with other families who have had similar experiences x

      Reply
    1. Louise Post author

      We had a wonderful day – the three girls had so much fun together and I loved that they all had a big group hug when it was time to say goodbye. Such a special moment πŸ™‚

      Reply
  2. Debbie

    Hi Louise, it must be nice to be with people who know exactly what you are going through without having to explain or answer questions. That is a lovely, warm and fuzzy photo.

    xx

    Reply
    1. Louise Post author

      Thanks Debbie. It is so lovely spending time with other families who “get it” and seeing Jessica making friends with other heart children is always such a joy x

      Reply
    1. Louise Post author

      Thanks Vicky. So lovely to watch them having so much fun together and we had a lovely chat with P’s parents too πŸ™‚

      Reply
  3. Kim Carberry

    Ahh! I have found a lot of support with other heart families….Especially when my girls were having surgery.
    That photo is adorable. I hope they had a fab time together x

    Reply
    1. Louise Post author

      Thanks Kim, so glad you’ve had such good support with other heart families too. We had such a lovely time catching up with P’s family and the girls had so much fun together πŸ™‚

      Reply
    1. Louise Post author

      Thank you Nat, it was so lovely to see the girls having fun together and seeing that friendship blossom πŸ™‚

      Reply

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